Patient and Public Involvement Toolkit
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More About This Title Patient and Public Involvement Toolkit

English

  • Providing information to implement a new core healthcare requirement – patient involvement
  • Including real case scenarios to illustrate the principles of effective PPI
  • Following the unique Toolkit series format of flowcharts and layouts that guide the reader through each section

English

Julia Cartwright is a research psychologist and director of Flex Business Consulting Ltd. She has an expert knowledge in patient information and health communications and has worked as a strategic advisor to HealthQWest Scotland. She has also held research posts at The Picker Institute, The University of Oxford's Health Service Research Unit and Oxford Brookes University. She is a member of The Community Partnership Forum, The Better Healthcare Programme for Banbury & Surrounding Areas.

Sally Crowe is a Director of Crowe Associates Ltd. She has extensive experience in providing consultancy, training and project management for patient and public involvement in health and social care research. She is a project consultant to the PRIME (Partnership for ME Research) Project, and the UK Prostate Link project. She is currently managing the development of a service user and carer component to the social care themed Log on to Care site and chairs the monitoring and implementation group of the James Lind Alliance, a national initiative that aims to tackle treatment uncertainties in health care.

Series editors: Douglas Badenoch, Carl Heneghan, Rafael Perera

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Foreword.

Chapter 1 Introduction.

The toolkit series.

Aim of this toolkit.

Why have a PPI toolkit?

The language of PPI.

Getting started.

Levels of PPI.

Chapter 2 What is patient and public involvement?

Why bother with PPI?

Why is PPI growing in health and social care?

Changes in PPI legislation.

How does PPI help organizations and services and care change?

Improving health services.

Improving health research.

Global networks.

Monitoring of health services.

Developing health organizations.

Developing an organizational strategy for PPI.

Defi ne structures within your organization.

Defi ne structures outside your organization.

Four ways to develop PPI.

Chapter 3 How to conduct effective PPI.

Searching for literature about involvement.

Searching the grey literature for PPI publications.

PPI search terms.

Searching and citing issues in PPI.

Involving the right people.

PPI methods and tools.

Reviewing documents.

Designing a questionnaire for a survey.

Running a focus or discussion group.

Running a workshop.

Practical considerations.

An icebreaker: tree types.

Exhibitions and road shows.

Interviews.

Chapter 4 Building relationships.

Recruitment and networking.

Methods for recruitment.

Support and training for participants and professionals.

Interpersonal skills: running effective meetings and workshops.

Role of chairperson or facilitator.

Dealing with diffi cult situations and managing conflict.

Being inclusive.

Avoiding the pitfalls.

Online communication in PPI.

Communicating in advance.

Chapter 5 Evaluation of PPI.

Evaluating PPI methods and process.

Evaluating the impact of PPI on a service or project.

Evaluating the impact of PPI on the people who took part.

Chapter 6 The future of PPI.

Allocation of resources and better use of resources.

Accessibility of services.

Health professionals working with patients and the public.

Developing trust and credibility between the public and health organizations.

Improving quality of care and reducing harm.

Final thoughts.

Conclusions.

Index.

English

"What I liked most about this book is the clear layout of the chapters. It is easy to read and understand, and has plenty of practical ideas on how patients and public can become involved, engaged and empowered ... Overall this book achieves its objective and if you are about to undertake PPI, I would recommend this toolkit as essential reading prior to embarking on that journey." (British Journal of Cardiac Nursing, 1 November 2011)
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