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More About This Title Childhood Cancer
Each year more than 5,000 children and teens in the United States are diagnosed with a solid tumor (e.g., kidney tumor, liver tumor, neuroblastoma, retinoblastoma, or sarcoma). The illnesses and their treatments can have devastating effects on family, friends, schoolmates, and the larger community. This newly updated edition contains essential information families need during this difficult time. It includes descriptions of the newest treatments, such as computer-assisted surgery, tandem stem cell transplants, and targeted therapies as well as practical advice about how to cope with diagnosis, medical procedures, hospitalization, school, and finances. Woven throughout the text are true storiespractical, poignant, moving, funnyfrom more than 100 children with cancer, their siblings, and their parents. The book, reviewed by renowned experts in childhood cancer, also contains a list of helpful resources.
Nancy Keene, a well-known writer and advocate for children with cancer, is the parent of a 24-year survivor of childhood cancer. She is one of the founders of the nonprofit Childhood Cancer Guides, and she has written many books for families of children with cancer, including "Childhood Leukemia"; "Your Child in the Hospital"; and "Chemo, Craziness, and Comfort". She co-authored "Childhood Brain & Spinal Cord Tumors" and "Childhood Cancer Survivors". She served as chair of the Patient Advocacy Committees of both the Children’s Cancer Group (CCG) and the Children’s Oncology Group (COG). In her spare time, she likes to read, hike with her dogs, and kayak in the Salish Sea. Anne Spurgeon, trained as a historian at the University of Wisconsin, is the parent of a long-term survivor of rhabdomyosarcoma, a soft tissue sarcoma. For more than 15 years, she served as the executive director of the Badger Childhood Cancer Network in Madison, Wisconsin. Its mission is to educate, support, serve, and advocate for children with cancer, their families, survivors of childhood cancer, and the professionals who care for them. Anne enjoys having adventures with her three interesting young adult children; kayaking the beautiful lakes of Wisconsin; reading history, anthropology, and science; and making and drinking craft beer.
Praise for Previous Editions of Childhood Cancer "This practical guide will empower parents to understand the disease better and participate more actively in the treatment process. Recommended for all consumer health collections." – Library Journal “There’s only one word to describe this book––terrific! It is definitive, comprehensive, and easy to read…I recommend this guide to health professionals in pediatric oncology and all parents coping with a child with a solid tumor.” ––Denise Cain-Jones, MSW, ACSW Update Newsletter, Association of Pediatric Oncology Social Workers "In my 15 years of experience as a pediatric oncology nurse, I have never come across a book as informative, easy-to-read, honest, and encouraging as Childhood Cancer… [It] will truly empower those who read it to be better advocates for their children. I am recommending this book to all the pediatric oncology nurses, social workers, and family support personnel I know." – Kari Yarwood, ND, RN, CPON Pediatrics Special Interest Group Newsletter, Oncology Nursing Society "Having a child diagnosed with cancer is an emotional time that often leaves a family feeling helpless and without control. Written by parents who have walked in the shadow of childhood cancer, this book provides detailed information, open-armed support, and the arsenal of tools needed to fight the battle that lies ahead." – Clarke Anderson, MD Children’s Center for Cancer and Blood Diseases, Children’s Hospital Los Angeles "Childhood Cancer is an exceptional resource for parents who are forced to navigate the complex world of childhood cancer. It is invaluable for all family members." – Eleanor Pask, RN, MScN, EdD, Executive Director Candlelighters Childhood Cancer Foundation ~ Canada “This guide is written specifically for the families and caregivers of newly diagnosed children…The authors blend technical information in easy-to-understand language with advice from scores of parents and survivors…The book is sensitively and thoughtfully rendered.” ––Today’s Librarian "An excellent, supportive, and well-needed book." – Alan Rees Consumer Health, A Majors Report "This book uniquely succeeds in meshing clinical knowledge of impeccable scientific quality with a pragmatic, 'been there done that' sensibility of what is important to parents and caregivers. I recommend it most highly for those in need of helpful knowledge that will empower and help parents and caregivers to cope." – Mark Greenberg, MD Professor of Paediatrics & Surgery, University of Toronto Chair, Paediatric Oncology Group of Ontario "We are eternally grateful for the invaluable information and advice found in this book! As parents, a patient, and participants in this project, it is truly a gift of guidance, hope, and comfort. Not only would I recommend it for anyone in need, but it definitely should hold a proud place on the book shelf of every pediatric facility." – Cheryl, Michael, and Shoshana Tobias Childhood cancer survivor and her parents “Patient empowerment is the theme, and this new book gives parents and caregivers the knowledge and skills to partner for the best medical care possible.” ––School Nurse News "I am a physician and the parent of a child with cancer. The toll that pediatric cancer takes on families is unquantified, but it includes physical and psychiatric illness in the child and in family members, divorce, and tremendous financial stress. Having a resource for coping with all the hardships is the first step toward putting the world back together, and Nancy Keene's books are the best solution I have found." – Catherine L. Woodman, MD, parent of a childhood cancer survivor Departments of Psychiatry and Family Medicine, University of Iowa